angelwthwingz's Cancer Blog

July 9, 2008

Not having any fun here. Views: 335

I am just not having any fun here. My second chemo came of just like the first. you know the drill, you go you get stuck, plugged in, take a nap, go home with your steriod high and you are feeling great! That is until the crash or the pain or whatever it is that plagues you personally.

This time round for me it was the Neulasta shot, now what the heck is that about. I had some fatigue, dealable, (dealable, yes that is a word I made up, I like it) then on Tuesday I started with a little tingling in my feet which turned to pain that obviously had a road map to my central nervous system and traveled up my legs and wasn’t happy until the pain hit my hips. This is a pain you can’t describe, you have to live it, OH joy for all of us! It makes walking almost impossible, I suddenly went from an active 48 year old taking care of everything I can or would have ever needed to an elderly little parent begging her children for a drink and a few tylenol. So how long does this pain last? Thank God this is all temporary.

Today, Wednesday I plan on going into the office and sit at a desk and act as a competant professional, (if I can reach my feet and put on shoes….lol). I have been blessed with a boss that although he is a little overbearing he means well and had a remote office set up in my home, but there is no replacement for peoples smiles and laughter at lunch. Well, that is my plan, wish me luck.

Posted on July 9, 2008 at 1:36:19 AM by angelwthwingz ( Link to this post.

Not having any fun here., Post a comment.

7 comments)

Hi Angel,
I’m so sorry to hear the shot is kicking your butt. That’s how I described what it did to me. I felt like I’d been hit by a train. Although my pain started in my mid-section and moved it’s way up. My skin was so sensitive I couldn’t hardly touch it. They warned me I could have a little bone pain, but I was not at all prepared for that. But I guess some people don’t experience it that bad. Oh, lucky us :)

Unlike you, after my first Nulasta shot my white blood cell count went really, really high. I can’t remember exactly but the oncologist said they’d be happy with 4,000 (I could be wrong with that but it’s ok for the sample I’m giving) and my count was up to like 40,000 thousand last week and is now down to 28,000. So he is going to lower my dose of Nulasta A LOT.
I’m wondering if they gave you a pretty good dose since you had such problems the first time.

I was in bed for 3 days, hurting a bunch! And then it slowly went away. I did get some pain pills for it which I think helped a little more than just Tylenol or ibuprofen.

I tried to help myself get through the pain by saying that I think I’d rather have the pain than be really nauseas or vomiting, which I did not have either of.

I’m so sorry you have to work through all of this. I’m very, very lucky that I don’t “have” to work. I’m self employed and able to take all the time I want to deal with and recover from all of this. I can’t imagine “having” to perform, but I know a lot of people do. Boy I’ll be saying extra thank you prayers tonight!

Please though, do not try to over do it. I know that’s easier said than done and I’m the worst at listening to my own advice, but I think in the long run you will be better off the more you can rest early in the game.
I’ll pray that you get feeling better soon. And if you do not . . . call your doctor! I called mine every day for 3 or 4 days when my side effects started happening.

Keep Smilin’
Many Hugs,
Wendy

Posted on July 9, 2008 at 2:01:02 AM by wildspirit

Sorry you are in such a tough place. My prayers are with you and I hope you feel better.

One of the hardest things about being here is experiencing all this hardship and not being able to do much. One of the best things is knowing my prayers are heard and the One listening can do so much.

Be well and blessed

Hugz
Mac

Posted on July 9, 2008 at 2:05:32 AM by rigidridr

I am sorry you are having such a tough time. I have had chemo twice at age 52 and then again at 64 and I remember how tough it was. I wish I could make it better for you.
My thoughts and prayers are with you.
Hugs,
Joyce

Posted on July 9, 2008 at 5:34:42 AM by joyce

Count me in for prayers! =o)

I finished my first chemo last night at 9:30, got home at 11:00, woke up this morning nauseous with a terrible headache! Last night I even changed some words of a song. “Killing me slowly with chemo…”

Best wishes at work today. It always makes me feel better to get out and see everyone.

Posted on July 9, 2008 at 5:55:05 AM by littleprincess

Hi there, Just wanted you to know I am sending a lot of love XXXXXXXXXXXXXXXXXXXXXXXXXXOOOOOOOOOOOOOOOO.

Posted on July 10, 2008 at 11:59:45 AM by karlak

Thinking of you and wishing you an incredible amount of tolerance during this crappy part. hang in there!

Posted on July 10, 2008 at 5:59:15 PM by theresac

It sounds like we have a few things in common in that I also have 3 grown children. I have been divorced for 21 years and with a recent empty nest it makes things a bit lonely at times. Thanks for your kind words when I received my miracle news that my bone marrow biopsy revealed that I wasa in REMISSION. I was diagnosed almost 14 years ago, so this is a very long battle that seems to be never ending. What did those DOCS know? Stay Strong. Hugs, Patty